Yeah, yeah, yeah. . . I know I suck at this whole blogging thing, but let’s face it: this summer was brutal for me. Two ER trips due to Endometriosis, a shitty doctor who told me my pain was “in my mindset” and the agonizing wait to get into a new clinic (which has a much happier ending).
I walked out of that new clinic with yet another diagnosis – one that makes so much sense when it comes to my type two diabetes diagnosis. I was diagnosed with PCOS and told that between this, the diabetes and the endometriosis that I am unlikely to be a candidate for pregnancy.
It was crushing, honestly. I’ve cried about it. I’ve been angry.
This diagnosis though makes sense. The symptoms, the diabetes… it all makes sense.
That being said, this post was triggered and inspired by one of my classes today. I’m back in school after a semester off and while I am loving it, let’s be honest – it’s draining. I come home and nap after my classes before I go to work for the afternoon. I try and get homework done early in the week, but that has yet to happen. I’m just wiped out.
Today we were discussing gender and how our identities often intersect with other aspects of our lives. Some of the things I listed were my sexuality (I’m openly lesbian), a spoonie, endometriosis warrior, a chronic illness fighter and someone who has invisible illnesses.
When it came time to discuss these with other classmates in smaller groups, I was hesitant. I didn’t want to share this because it’s so hard sometimes. It’s frustrating to hear “but you don’t look sick”, or “you’re too young”, or “you’re too healthy and thin to have diabetes”, but guess what? I do. I fight every day. I push myself every day. I don’t want to have these – but I do.
I am sick.
One of the people in my group is very vocal about her approach and a family member who has been ill. Which, I appreciate – it’s nice to hear from someone else about what they may be dealing with.
The problem I have is that today, when I brought up my illnesses – all of them being invisible – I was immediately thrown into a whirlpool of health treatments that don’t mesh well with me. They aren’t something I’m comfortable with, something I feel that would benefit me. She didn’t seem to understand that and kept going on and on.
When I talked about how a recent trial of me being off of metformin for the diabetes sent me back into the range of the 200-300 blood glucose level, she said I just need to get off of the medication and let my body detox.
Yeah, no. I’m not willing to risk that and put myself in a possible position to end up in the emergency room because my blood glucose won’t come down to a safe level. I’m not willing to risk going off of my mood stabilizers or anti-depressants. I know what I am like without them, and I don’t want to go there again.
I know how I am without being on my current birth control pill. It sent me to the emergency room twice this summer. I bled for six weeks. I was sick. I was in so much pain I could hardly even eat.
Let’s face it: what may work for you, may not work for me. And that is totally fine. We all have different bodies that react to things differently. Right now, my body is doing fine on the metformin, it’s doing really well with the new birth control pills to help my Endometriosis, and my mood stabilizer (while I am adjusting to a higher dose currently) is worked wonders.
When my girlfriend and I talked today about this entire thing, this is what she said:
“I, personally, have seen the amazing benefits your treatment plan has had on you: a happier, healthier katie. ❤”
Having her and my friends and family at my side helping me through these last few months has been life saving. I’ve been in a very dark place for a long time before I finally started getting treatment and for others to see the changes in me? Means the world and really hits home that I am doing what is best for me.
Let me make my own choices with my doctor and psychiatrist and gynecologist about what works for me. Let me take the medications that keep me stable, keep me out of the emergency room. Let me handle my own treatment, knowing what works for me.
Being chronically ill is hard enough as it is, but knowing what works best for me? Has been amazing and I am not letting that go anytime soon.