Exhaustion, Endometriosis and Endless Appointments

July 9, 2015 Katie A Chronic Illness 1 Comment

I’m sure many of you will understand how utterly exhausting it is to just get through one appointment, much less three appointments in one week – two in one day. Wednesday was brutal and I am beyond exhausted and still trying to sort everything out, even though they were both good appointments and I got a lot accomplished in one day.

Monday was my second round of therapy with V, where we briefly talked about my recent bipolar diagnosis, how I was adjusting to medication so far and then we moved onto talking about my coming out experience (you can read about that here) and how it’s been such a struggle for me since it happened. It was hard, but not as hard as I thought it would be. I thought I’d break down in tears, but I didn’t. I thought quietly at several points during the session, but I really felt somewhat better when I left.

I go back next Monday morning for round three before I head to work for the day. I’m assuming I’ll be going weekly for awhile, at least until we start to make a dent in some of the things that I need to deal with and start working through. It’s overwhelming, but I know I have a good team behind me.

Wednesday morning started off crazy. By the time I was ready to leave to pick up my mom to go to my appointment with me, I couldn’t get my car started. I didn’t pick her up until ten minutes before my appointment and then I had to speed over to the office, but we made it on time. The entire way, I could feel myself start to panic. The stress of the morning plus knowing I could get some huge results had me all worked up. No matter what I did, I couldn’t calm down.

We waited forever. Nearly over an hour. So frustrating, but what can you do?

Finally get called back, and no surprise – my blood pressure is fine but my pulse was fast. I explain it’s anxiety, it’s always that way… so they recheck it in a few minutes. Still high. Telling me to “relax” doesn’t help, it just stresses me out more. Ugh.

Doctor M comes in and tells me my lab work results and I am floor. My A1C dropped from a 10.3 at diagnosis in February to a 6.9, which is under where they want a typical diabetic patient. I almost fell out of my chair and I am still in shock, holy crap. He also said that I can stop all medication for diabetes and just continue to eat healthy and exercise and test daily. I go back in three or four months for another round of lab work to check and see how things are doing.

I also left with an inhaler for exercise induced asthma and a refill of my anxiety/migraine/heart rate medication. Apparently the new call center that was forced on the clinic never relayed the refill request I asked and yeah… not happy. My nurse told me the secret about who to call and what extension to use, so now I don’t have to worry about it!

The big news is that I left with a referral to a gynecologist since my Endometriosis has only been getting worse these last few months. I’ve had a period for two weeks now, doubled over in pain nearly every day and nothing I’ve tried in the past seems to be helping anymore. I’m going to be pushing for surgery. I can’t stand this pain anymore. I go in on July 28 and hopefully we can get things rolling and begin some serious treatment.

Wednesday afternoon was my visit to Planned Parenthood. The pills I got in November just… weren’t working. I was still in pain, still having crazy periods and just… not working the way we’d hoped. After paperwork, waiting and surprise another slightly high pulse, I finally talked to a doctor and got new pills. I started them last night so it’s still too early to tell if they’ll help.

The doctor there also said it sounds like surgery is the next step since everything we’ve tried hasn’t worked and to make sure I tell my new gynecologist this when I see him at the end of the month. So, that’s what I will be doing.

It was an exhausting week for appointments and I know it’ll be this crazy for awhile.

I’ve spent today resting, and plan to curl up again and watch some television for the rest of the night. I go back to work tomorrow for a short shift, and I’m excited to see my work family but I am hoping I am not this tired and sore when I go tomorrow.

One day at a time, right? Just keep breathing. Stay strong.

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One Response to “Exhaustion, Endometriosis and Endless Appointments”

  1. Ashtyn

    Oh my goodness, that does sound exhausting! I feel run down just hearing about it so I can’t imagine how you must be feeling. Even still, I’m incredibly impressed by the strength and optimism you’re holding on to through all of this. It really is amazing how strong you’ve proved to be! I hope things start getting easier soon!

    Reply

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